Through Our Eyes: Learning from the Patient/Family Perspective | |
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13:30 – 13:50 | Global ACHD QOL Study Philip Moons, Belgium |
13:50 – 14:00 | QOL in Children and their Parents Bradley Marino, US |
14:00 – 14:20 | End of Life: What do Patients Want and Need? Noemi de Stoutz , Switzerland |
14:20 – 14:40 | Beyond the Exam Room: Why CHD Camps Matter Shelagh Ross, Canada |
14:40 – 15:00 | Hospital, Home, World: Three Perspectives on CHD Disty Pearson, US |
15:00 – 15:30 | Patient/Family QOL Panel Above plus: Scott Leezer, Christy Sillman, Rob Lutter |