ICHLS (17 July, 2017 Monday / 13:30 - 15:30)

Through Our Eyes: Learning from the Patient/Family Perspective
13:30 13:50 Global ACHD QOL Study
Philip Moons, Belgium
13:50 14:00 QOL in Children and their Parents
Bradley Marino, US
14:00 14:20 End of Life: What do Patients Want and Need?
Noemi de Stoutz , Switzerland
14:20 14:40 Beyond the Exam Room: Why CHD Camps Matter
Shelagh Ross, Canada
14:40 15:00 Hospital, Home, World: Three Perspectives on CHD
Disty Pearson, US
15:00 15:30 Patient/Family QOL Panel
Above plus: Scott Leezer, Christy Sillman, Rob Lutter