Day 1: 17 July, 2017 Monday

Through Our Eyes: Learning from the Patient/Family Perspective
13:30 – 13:50 Global ACHD QOL Study
Philip Moons, Belgium
13:50 – 14:00 QOL in Children and their Parents
Bradley Marino, US
14:00 – 14:20 End of Life: What do Patients Want and Need?
Noemi de Stoutz , Switzerland
14:20 – 14:40 Beyond the Exam Room: Why CHD Camps Matter
Shelagh Ross, Canada
14:40 – 15:00 Hospital, Home, World: Three Perspectives on CHD
Disty Pearson, US
15:00 – 15:30 Patient/Family QOL Panel
Above plus: Scott Leezer, Christy Sillman, Rob Lutter

Day 2: 18 July, 2017 Tuesday

A Collective Voice: The Power of Patient- Provider Partnerships
10:00 - 10:20 Turning Stories Into Action
Egidia Rugzwingoga, US
10:20 - 11:05 Patient-Provider Partnerships for Quality Improvement Professional Certification and Accreditation
Curt Daniels, US
Transparency and Engagement
David Kasnic, US
Community-based Research: The RHD Model
Liesl Zuhlke, South Africa
11:05 - 11:35 Patient-Provider Partnership for Awareness and Access HeartKids NZ Model
Rob Lutter, New Zealand
Empowering Access in India
Vikas Desai, India
11:35 - 12:00 Discussion

Day 3: 19 July, 2017 Wednesday

International Congenital Heart Leadership Summit Plenary Session (ICHLS): Race, Class, and Gender: Addressing Disparities in CHD
13:30 - 13:45 Every Heart Counts: A Global Vision for CHD Health
Chris Hugo-Hamman, South Africa
13:45 - 14:00 CHD is a Feminist Issue: Women’s Rights and Sustainable CHD Programs
Bistra Zheleva, US
14:00 - 14:15 Race, Class and CHD Outcomes
Titus Chen, US
14:15 - 14:30 CHD and RHD: Two Diseases, One Voice
Amy Verstappen, US
14:30 - 15:00 My Heart vs. My Real World: Cultural Challenges in CHD
Patient/Family Panel:
15:00 - 15:30 Round Table: Advocacy Strategies for Reducing CHD Disparities
Above plus Ann-Marie Saarinan, Annabel LaVielle, Amy Basken, Joanna Markbreiter (RHD Action/World Heart), Kathy Jenkins, Scott Leezer