| Through Our Eyes: Learning from the Patient/Family Perspective | |
|---|---|
| 13:30 13:50 | Global ACHD QOL Study Philip Moons, Belgium |
| 13:50 14:00 | QOL in Children and their Parents Bradley Marino, US |
| 14:00 14:20 | End of Life: What do Patients Want and Need? Noemi de Stoutz , Switzerland |
| 14:20 14:40 | Beyond the Exam Room: Why CHD Camps Matter Shelagh Ross, Canada |
| 14:40 15:00 | Hospital, Home, World: Three Perspectives on CHD Disty Pearson, US |
| 15:00 15:30 | Patient/Family QOL Panel Above plus: Scott Leezer, Christy Sillman, Rob Lutter |
| A Collective Voice: The Power of Patient- Provider Partnerships | |
|---|---|
| 10:00 - 10:20 | Turning Stories Into Action Egidia Rugzwingoga, US |
| 10:20 - 11:05 | Patient-Provider Partnerships for Quality Improvement Professional Certification and Accreditation Curt Daniels, US Transparency and Engagement David Kasnic, US Community-based Research: The RHD Model Liesl Zuhlke, South Africa |
| 11:05 - 11:35 | Patient-Provider Partnership for Awareness and Access HeartKids NZ Model Rob Lutter, New Zealand Empowering Access in India Vikas Desai, India |
| 11:35 - 12:00 | Discussion |
| International Congenital Heart Leadership Summit Plenary Session (ICHLS): Race, Class, and Gender: Addressing Disparities in CHD | |
|---|---|
| 13:30 - 13:45 | Every Heart Counts: A Global Vision for CHD Health Chris Hugo-Hamman, South Africa |
| 13:45 - 14:00 | CHD is a Feminist Issue: Womens Rights and Sustainable CHD Programs Bistra Zheleva, US |
| 14:00 - 14:15 | Race, Class and CHD Outcomes Titus Chen, US |
| 14:15 - 14:30 | CHD and RHD: Two Diseases, One Voice Amy Verstappen, US |
| 14:30 - 15:00 | My Heart vs. My Real World: Cultural Challenges in CHD Patient/Family Panel: |
| 15:00 - 15:30 | Round Table: Advocacy Strategies for Reducing CHD Disparities Above plus Ann-Marie Saarinan, Annabel LaVielle, Amy Basken, Joanna Markbreiter (RHD Action/World Heart), Kathy Jenkins, Scott Leezer |